Sickle Cell Society Podcast
The Sickle Cell Society is having open discussions about challenging subjects in this podcast.
There are challenges to living with sickle cell disorder, and there are a lot of subjects that aren't openly discussed, in a way that might help others to live their best life with the condition. We are unpicking some subjects by inviting sickle cell doctors and patients onto the podcast couch to share their experiences and answer questions.
About us
We're the Sickle Cell Society, and we're the UK’s patient charity for people living with sickle cell disorder.
We believe that people living with the condition have the right to quality care. We support and represent people, patients and families affected by sickle cell disorder to improve their overall quality of life.
We work with health care professionals, pharmaceutical companies, researchers, parliamentarians, parents, and people living with sickle cell to support and advise, raise awareness of the disorder and campaign for improvements in treatments and care. Our aim is to support those living with sickle cell, empowering them to achieve their full potential.
Sickle Cell Society Podcast
Dating, relationships and sickle cell
When we asked the sickle cell community about their ‘private life’ and sickle cell, it was clear that dating and relationships were providing for some challenging times and difficult conversations.
Our host, Kesewaa Browne, asked our panel about their experiences of navigating their love life with sickle cell disorder. The discussion covers looking for love, relationships, situationships and settled long term commitment. They get into the highs and lows and challenge of it all, but they all agree on what good love, with sickle cell as third wheel, looks like!
We hope you find the discussion helpful, and perhaps find new ways to open some of the challenging conversations needed to navigate through your own love life. It might also be helpful to see that others are going through the exact same challenges as you.
Panel members :
Gildé Nsianguana
Bolaji Farinto
Michael Dove
The panel discuss their own experiences of health conditions and sickle cell treatments during this episode. Please note :
The views expressed by our guests are their own personal opinions and experiences. This is not intended to be medical advice. Please consult your medical team before making any changes to your sickle cell treatment plan
Kesewaa Browne is a multiplatform Journalist for the BBC, and Assistant Producer and Sport Presenter at Riverside Radio. Kesewaa has produced a BBC documentary about sickle cell disorder and is passionate about raising the profile of the condition.
Further Information:
Watch our animated Priapism video : https://bit.ly/3CwC1Vn
Find additional resources about priapism : www.sicklecellsociety.org/priapism/
Learn more about sickle cell screening and testing : www.sicklecellsociety.org/screeningprogramme/
@SickleCellUK
https://www.sicklecellsociety.org/
Charity no. 1046631
