Sickle Cell Society Podcast
The Sickle Cell Society is having open discussions about challenging subjects in this podcast.
There are challenges to living with sickle cell disorder, and there are a lot of subjects that aren't openly discussed, in a way that might help others to live their best life with the condition. We are unpicking some subjects by inviting sickle cell doctors and patients onto the podcast couch to share their experiences and answer questions.
About us
We're the Sickle Cell Society, and we're the UK’s patient charity for people living with sickle cell disorder.
We believe that people living with the condition have the right to quality care. We support and represent people, patients and families affected by sickle cell disorder to improve their overall quality of life.
We work with health care professionals, pharmaceutical companies, researchers, parliamentarians, parents, and people living with sickle cell to support and advise, raise awareness of the disorder and campaign for improvements in treatments and care. Our aim is to support those living with sickle cell, empowering them to achieve their full potential.
Episodes
4 episodes
Pregnancy Planning and NHS Screening for Sickle Cell and Thalassaemia
When it comes to sickle cell and thalassaemia; genetic testing and screening— early checks that can identify a condition or carrier status, often before any symptoms appear — can shape life-changing decisions. Yet many people trying to understa...
Dating, relationships and sickle cell
When we asked the sickle cell community about their ‘private life’ and sickle cell, it was clear that dating and relationships were providing for some challenging times and difficult conversations. Our host, Kesewaa Browne, asked our pa...
Love life, family planning, and sickle cell.
We asked the sickle cell community to send us their burning questions about their intimate life, family planning and sickle cell. The response was clear - you wanted to hear more about :- Starting a family while taking hydroxycarbomide<...
Transition from child to adult sickle cell care
This episode generates a discussion between health care professionals and patients about how to get the best out of the transition from child to adult sickle cell services. This period can last from age 12 and last a decade, depending on needs,...
